Working Groups
EGPA
The European EGPA Study Group (EESG) was established in 2018 by Giacomo Emmi (Cattinara University Hospital, Trieste, Italy), Benjamin Terrier (Cochin University Hospital, Paris, France), and Augusto Vaglio (IRCCS Meyer University Hospital, Firenze, Italy) with the intention to create a network of scientists and clinicians from European Eosinophilic Granulomatosis with Polyangitiis (EGPA) referral centers, gathering clinical and scientific excellence and expertise to:
- promote collaborative clinical and translational studies,
- enhance knowledge about the disease,
- to develop new recommendations about its diagnosis and treatment.
The EESG currently consists of over 100 centers across Europe and actively cooperates with patient advocacy organizations (PAOs), as well as other scientific societies and groups working in the field of vasculitis.
To strengthen this network, EESG meetings are organized every year to discuss and share ideas and brought up new research proposals and projects. Since its inception, several studies have been conducted on clinical and therapeutic aspects of the disease, while a tight collaboration with PAOs has been also consolidated, emphasising the priority mission of building patient’s empowerment, reinforcing the therapeutic alliance between patients and physicians, and creating opportunities for cohesion and education.
FOR ADDITIONAL INFORMATIONS REGARDING EESG RESEARCH ACTIVITY, PLEASE VISIT
Lupus Nephritis
in preparation
EUGAVAS
The EUGAVAS study group is a collaborative network focused on research and care in IgA vasculitis. The European IgA Vasculitis (EUGAVAS Study Group) was created by Prof. Alexandra Audemard-Verger (France) and Dr. Alojzija Hocevar (Slovenia) in 2023.
The EUGAVAS is composed of 40 Europeans physicians from different specialties dermatologists, nephrologists, internists, rheumatologists, pediatricians and pathologists.
- The primary mission of this group was to provide the first European harmonized treatment guidelines for the management of adult patients with adult IgA Vasculitis. Prof. Ausguto Vaglio (Italy) has joined the group helping to build these recommendations.
- The goal of this group is also to federate and to build connections between paediatric and adult medicine in collaborating with, among others, Dr Louise Oni (UK) and Prof. Seza Ozen (Turquey).
- It also promotes multicenter studies to gather data on clinical presentations, treatment responses, and long-term prognosis.
- Additionally, they strive to raise awareness about IgA vasculitis within the medical community and among patients.
- Furthers research initiatives will explore genetic, environmental, and immunological factors contributing to the condition.
- The goal is to translate research findings into clinical practice, drawing randomized controlled trial ensuring better care for affected individuals.
By fostering collaboration across Europe, the EUGAVAS group seeks to unify efforts and share knowledge in IgA Vasculitis.
EUVAS secretariat and clinical trials administration:
Vasculitis & Lupus Research Group
Department of Medicine
Level 5, Box 157
Addenbrookes Hospital
Cambridge CB2 0QQ
United Kingdom
Contact:
T: +44 (0)1223 330137
E: office@vasculitis.org
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